But you might also feel scared about your future and worry about how to cope.
Even when youve been living with MCTD for some time, you may have questions and need support.
Getting a diagnosis is a major life event.
Luis Alvarez / DigitalVision / Getty Images
Adjusting to life with the disease can take time.
While youre adjusting to your new normal, you will experience ups and downs.
You might also fret about possible future symptoms.
All of these feelings are normal and to be expected.
Talking to friends, family, and healthcare professionals can help you work through these feelings.
It is important to follow your healthcare providers treatment plan and asks questions if you dont understand.
Lifestyle Modifications
Avoid the cold.
Avoiding the cold, caffeine, smoking, and injury can help reduce your symptoms.
Keep your core warm by dressing in layers.
Limit your exposure to the sun.
There is also evidence that supplementation ofvitamin Dcan be helpful as well.
However, before taking any supplements it is best to consult with your healthcare provider.
Eating a lot of processed meats, red meat, dessert, and refined grains can raise inflammation levels.
MCTD is also associated with digestive system problems, including heartburn (gastroesophageal reflux) and trouble swallowing.
Exercise
Remaining active with MCTD is important to living well.
Regular exercise can help with your pain and fatigue and prevent further complications.
Although you may hesitate to exercise, especially if you are in pain, its important to keep moving.
It is important to find something that works for you that keeps you moving.
Your goal is to engage in at least 150 minutes of activity a week.
This activity does not have to be intense.
Engaging in moderate exercise is enough to keep you mobile and healthy.
Aerobic exercise, along with resistance training and stretching can all lead to an improved quality of life.
Try going for a walk, biking, swimming, or hiking.
Find simple stretches that can be done from bed.
Use light weights or cans of soup to do bicep curls while seated in a chair.
Modify workouts to accommodate your symptoms.
If you have difficulty finding an exercise routine that works for you, talk to your healthcare provider.
Social
Living with a chronic illness like MCTD can make you feel alone.
Finding support is key to adjusting to your new normal.
You might find it hard to talk to friends and family about your experiences.
It is important to be open and honest with friends and family who are close to you.
They usually want to help but often dont know how.
Be specific and ask for the things you need.
Whatever it is you need, don’t be afraid to ask.
Finding a therapist who specializes in dealing with patients living with chronic illness might also be extremely helpful.
This team should be comprised of professionals who you trust and feel comfortable around.
Relationships with practitioners should be beneficial.
Writing things down can help ensure that you address all of your concerns with your healthcare provider.
Workplace Accommodations
Disclosing your diagnosis to your workplace is a personal choice and not required.
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