Living With Von Hippel-Lindau Disease
A diagnosis ofvon Hippel-Lindau disease (VHL)may come with anger, fear, and uncertainty. Although that is possible, there are ways to watch for thesetumorsandtreat themif they develop. There are multiple emotional, physical, and social considerations when living with VHL. fizkes / Getty Images These feelings are normal and completely valid. TheVHL Allianceoffers a hotline to call and connect with others who have experience with VHL. Feelings of being alienated or alone are common for those with VHL....